Ella’s story

Ella Skye Jakas came in to the world on the 16th of October 2007. After a rocky start to life Ella was diagnosed with Hemiplegic Cerebral Palsy in 2008 after suffering a stroke in utero. Ella also suffers from Epilepsy, thrombosis, dysphalgia, Developmental delay, laringomalatia, a heart murmor, sensory processing disorder, Speech processing disorder and a rare salt wasting disease supspected to be Pseudohypoaldosteronism. Ella is not allowed to drink any fluids and has medication and water via her PEG in he stomach. Her lungs Mymic Cystic fibrosis and Ella requires aggressive management for her chronic lung issues. She requires a High Salt, High Fluid and high calorie diet to keep her body alive. Ella spends most of her time On intraveinous medications to manage severe bacteria growing in her lungs. Ella has many other complex medical needs, some of which cant yet be diagnosed. Daily life is full of procedures and tears for miss Ella. But she is so tough and known to everyone as “Amazing Ella“. She is Our inspiration. Ella is an amazing little girl who has blown all her doctors away with what she achieves. This page is designed to be there for those that want to be a part of Ellas life, and support her journey to be the best darn Ella she can be 🙂 “

See her life in pictures here!


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